Insulin is #6.

Thanks to Our Diabetic Life for this….

#6 is ridiculous, and stupid, and when it was patented for $1 oh so many years ago so THIS wouldn’t happen.

My life is not for profit. My Type 1 Diabetes shouldn’t bankrupt me to stay alive.

THIS is what I’m fighting for.

Insulin is #6.

I ran across a fascinating bit of data yesterday watching an enlightening, and validating, lecture posted by a friend deep in the comment…

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April 4, 1988 I was diagnosed with Type 1 Diabetes. I know no other way of life….

April 4, 1988 I was diagnosed with Type 1 Diabetes. I know no other way of life.

I grew up thinking that precisely counting out 15 grapes, 4 orange segments and 1/2 of a cup of skim milk is what everyone did for snack time.

I grew up being told a “cure” was only 5-10 years away. Um, I was 2 when I was diagnosed, then 7 and 12 came and went, and then I graduated high school and college, and grad school…I’m still waiting.

I grew up traveling to Washington DC to speak to our Legislators, our Congressmen, Senators and even Presidents. I was told I “didn’t look like I had diabetes” – this gave me the passion (some call it fiery passion) that I have today about Advocacy and Education. What the hell am I supposed to look like?

I grew up first, pricking my fingers and giving myself multiple injections a day, to a glorious day when I was 13 that I began my first insulin pump. Tubing, tape and insertion sites became my new normal.

I grew up being judged solely by a number, my A1c. An average over every 3 months of my blood sugar levels. Oh, you’re a 6.5 – you’re doing wonderful to, oh, you’re an 8.2 – you must be doing something wrong.

I GREW UP, I’m 32 (for 26 more days) and I STILL HAVE TYPE 1 DIABETES. There is still no cure.

10,950 days I have had Type 1.

I still wear a minimed insulin pump and now wear a CGM (continuous glucose monitor on my arm).

I still don’t sleep.
I still fear needles.
I still hate knowing this is my everyday.
I still can’t just pick and and go without planning hours in advance.
I still fear the what-ifs.
I still fear not waking up because of a low blood sugar.
And I still hate. this. disease.

30 years doesn’t make it easier, it makes me angrier. It makes me want to throat punch people when they say, oh, just don’t eat sugar and you’ll be cured, right?
No, that’s not how this works. This is a life sentence. This is forever, until a cure. FIND A CURE. I’m done, I’m beyond done. I was done 30 years ago.

Today, April 4,2018 – I celebrate my 30th Dia-Versary, a date I never imagined would be here. But here it is. I celebrate I’m alive, I’m doing what I love every single day and I am surrounded by friends and family who have made my Diabetes not just my own to bear.

So to those who have supported me the last 30 years, today is a celebration and a day to drink a Margarita and say, hell, here’s to another 30 years of living!

#ThisIs30YearswithDiabetes

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Medtronic Diabetes new 670g is on and pumping! It, together with my FreeStyle …

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Medtronic Diabetes new 670g is on and pumping!

It, together with my FreeStyle Libre, are going to take my diabetes game to another level.

It’s all great, truly, but it’s still pokes and pricks, and blood and shots. It’s not a cure. But it helps me make sure my body is ready for one when that day comes!

#Thisis30YearswithType1Diabetes


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Here’s the thing about Type 1 Diabetes…I didn’t DO anything to get this. I…

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Here’s the thing about Type 1 Diabetes…

I didn’t DO anything to get this.

I didn’t ask for this.

But yet, throughout my life I’ve had to educate the hell out of people to understand the difference between Type 1 and Type 2.

Sure I would love to lose some weight, but did you know insulin makes you gain weight? Especially stubborn tummy weight?

Did you know I have to wait for the perfect “blood sugar number” to work out? Too high? I go into DKA (bad shit). Too low? Oh, you know, pass out and die. Yes, dramatic? But it’s the truth.

But you better damn believe I’m going to play the hell out of the cards I’ve been dealt. I’m going to LIVE my life, SCREAM at the top of my lung for a cure and never, ever give up. It wouldn’t be fair to the cards if I didn’t. 😉

THIS IS 30 YEARS WITH TYPE 1 DIABETES.


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First 10 Days done! It’s funny, in only 10 days I’ve gotten used to my “Libby”….

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First 10 Days done!
It’s funny, in only 10 days I’ve gotten used to my “Libby”.
I’ve gotten use to only sleeping on one side and not rolling over on her. I’ve gotten used to “beeping” before AND after meals.
I’ve gotten used to making sure I don’t take short cuts through doorways and knocking her of.

But never, ever in 30 years with Type 1 Diabetes have I gotten used to “having” Diabetes.

One day closer to a cure.

#Thisis30YearswithDiabetes


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A little-known technology that Fitbit and Apple are exploring could be the answer to healthy eating and peak performance

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So many exciting possibilities on the horizon! If we can make CGM’s (like my Libby and others), maybe they can start being 1. Less cost and 2. Less Painful 💗

Thankful for technology that allows me to manage and track my type 1 Diabetes!

#Thisis30YearswithDiabetes

A little-known technology that Fitbit and Apple are exploring could be the answer to healthy eating and peak performance

Glucose monitoring lets people track their blood sugar and see how food affects their body. Normally used by diabetics, the tech may hold promise for others.
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